Book Chapters
Anya E.R. Prince, "Consuming Genetics as an Insurance Consumer," in Consumer Genetic Technologies: Ethical and Legal Considerations, I. Glenn Cohen, et al., eds, Cambridge University Press. 2021, at 26, 13 pages.
Anya E.R. Prince, "The Genetic Information Nondiscrimination Act (GINA) of 2008," with M. Waterstone, in Genetic Discrimination: Transatlantic Perspectives on the Case for a European-level Legal Response, edited by Gerard Quinn, Aisling de Paor, and Peter Blanck. NY: Routledge, 2015, at 114, 14 pages.
Articles
Anya E.R. Prince, "A Proposal for an Inclusive Working Definition of Genetic Discrimination to Promote a More Coherent Debate," with others, Nature Genetics, June 24, 2024, 7 pages. (DOI: 10.1038/s41588-024-01786-8)
Anya E.R. Prince, "Reproductive Health Surveillance," 64 Boston College Law Review 1077 (2023), 68 pages.
Anya E.R. Prince, "Disclosing Privacy and Discrimination Protections in Informed Consent," 33 Health Matrix 79 (2023), 66 pages.
Anya E.R. Prince, "How Should We Address the Inevitable Harms from Non-Negligent Variant Reclassification in Predictive Genetic Testing?," with others, 32 Journal of Genetic Counseling 18 (2023), 13 pages. (DOI: 10.1002/jgc4.1638)
Anya E.R. Prince, "Anti-Selection & Genetic Testing in Insurance: An Interdisciplinary Perspective," with Dexter Golinghorst, Aisling de Paor, Yann Joly, Angus Macdonald, Margaret Otlowski, & Richard Peter, 50 Journal of Law, Medicine, and Ethics 139 (2022), 16 pages.
Anya E.R. Prince, "Patient and Provider Perspectives on Polygenic Risk Scores: Implications for Clinical Reporting and Utilization," with others, 14 Genome Medicine 114 (2022), 16 pages. (DOI: 10.1186/s13073-022-01117-8)
Anya E.R. Prince, "The Goldilocks Conundrum: Disclosing Discrimination Risks in Informed Consent," with Sonia M Suter, Wendy R. Uhlmann, & Aaron M. Scherer, 31 Journal of Genetic Counseling 1383 (2022), 11 pages. (DOI: 10.1002/jgc4.1613 )
Anya E.R. Prince, "Voluntary Workplace Genomic Testing: Wellness Benefit or Pandora's Box," with Kunal Sanghavi, Betty Cohn, W. Gregory Feero, Kerry A. Ryan, Kayte Spector-Bagdady, Wendy Uhlmann, Charles Lee, J. Scott Roberts, and Debra J.H. Mathews, 7 npj Genomic Medicine 5 (2022), 6 pages.
Anya E.R. Prince, "Employees’ Views and Ethical, Legal, and Social Implications Assessment of Voluntary Workplace Genomic Testing," with others, 12 Frontiers in Genetics 1 (2021), 9 pages.
Anya E.R. Prince, "Genetic Testing and Insurance Implications: Surveying the US General Population about Discrimination Concerns and Knowledge of the Genetic Information Nondiscrimination Act (GINA)," with Wendy R. Uhlmann, Sonia M. Suter and Aaron M. Scherer, 24 Risk Management & Insurance Review 341 (2021), 25 pages. (DOI:10.1111/rmir.12195)
Anya E.R. Prince, "Hidden Trade-Offs in Insurance Wellness Programs," 2021 Michigan State Law Review 341, 68 pages.
Anya E.R. Prince, "Location as Health," 21 Houston Journal of Health Law & Policy 43 (2021), 51 pages.
Anya E.R. Prince, "Long-awaited Progress in Addressing Genetic Discrimination in the US," with Anna C.F. Lewis and Robert C. Green, 23 Genetics in Medicine 429 (2021), 3 pages.
Anya E.R. Prince, "The Persistent Lack of Knowledge and Misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a Decade after Passage," with others, 23 Genetics in Medicine 2324 (2021), 11 pages.
Anya E.R. Prince, "The Problems with Patchwork: State Approaches to Regulating Insurer Use of Genetic Information," with Jarrod O. Anderson and Anna C.F. Lewis, 22 DePaul Journal of Health Care Law 1 (2021), 41 pages.
Anya E.R. Prince, "Establishing the International Genetic Discrimination Observatory," with others, 52 Nature Genetics 466 (2020), 3 pages.
Anya E.R Prince, "Is Real-Time ELSI Realistic?" with John M. Conley, Arlene M. Davis, Jean Cadigan & Gabriel Lazaro-Munoz, 11 AJOB Empirical Bioethics 134 (2020), 11 pages. (DOI: 10.1080/23294515.2020.1722289)
Anya E.R. Prince, "Proxy Discrimination in the Age of Artificial Intelligence and Big Data," with Daniel Schwarcz, 105 Iowa Law Review 1257 (2020), 62 pages.
Anya E.R. Prince, "Referencing BRCA in Hereditary Cancer Risk Discussions: In Search of an Anchor in a Sea of Uncertainty," with Margaret Waltz, Julianne M. O'Daniel, Ann Katherine M. Foreman, Bradford C. Powell, and Jonathan S. Berg, 29 Journal of Genetic Counseling 949 (2020), 11 pages. (DOI: 10.1002/jgc4.1219)
Anya E.R. Prince, "What Guidance does HIPAA Provide to Providers Considering Familial Risk Notification and Cascade Genetic Testing?," with others, 7 Journal of Law and the Biosciences 1 (2020), 14 pages.
Anya E.R. Prince, "Potential (Mis)use of Epigenetic Age Estimators by Private Companies and Public Agencies: Human Rights Law Should Provide Ethical Guidance," with Charles Dupras, Stephan Beck, Mark A. Rothstein, Alison Berner, Katie M. Saulnier, Miriam Pinkesz, Stamatina Liosi, Lingqiao Song, and Yann Joly, Environmental Epigenetics, July 2019, at 1, 12 pages. (DOI:10.1093/eep/dvz018)
Anya E.R. Prince, "Shared Decision-making in Vascular Surgery," with Jun Xu, 70 Journal of Vascular Surgery 1711 (2019), 5 pages.
Anya E.R. Prince, "A survey of U. S. state insurance commissioners concerning genetic testing and life insurance: Redux at 27," with Dexter R. Golinghorst, 29 Journal of Genetic Counseling 928 (2019), 8 pages. (DOI: 10.1002/jgc4.1197)
Anya E.R. Prince, "Consent for Clinical Genome Sequencing: Considerations from the Clinical Sequencing Exploratory Research Consortium," with Joon-Ho Yu, et.al.,16 Personalized Medicine 325 (2019), 11 pages.
Anya E.R. Prince, "Gene Therapy's Field of Dreams: If you Build it, Will we Pay?" with Laura Hercher, 97 North Carolina Law Review 1463 (2019), 32 pages.
Anya E.R. Prince, "Political Economy, Stakeholder Voices, and Saliency: Lessons from International Policies Regulating Insurer Use of Genetic Information," 5 Journal of Law and the Biosciences 461 (2019), 34 pages.
Anya E.R. Prince, "Comparative Perspectives: Regulating Insurer Use of Genetic Information," 27 European Journal of Human Genetics 340 (2019), 9 pages.
Anya E.R. Prince, "Reconceptualizing Harms and Benefits in the Genomic Age," with Benjamin E. Berkman, 15 Personalized Medicine 419 (2018), 10 pages.
Anya E.R. Prince, “Analysis of State Laws on Informed Consent for Clinical Genetic Testing in the Era of Genomic Sequencing,” with Kayte Spector-Bagdady and others, 178C American Journal of Medical Genetics, Part C, Seminars in Medical Genetics 81 (2018), 8 pages.
Anya E.R. Prince, "Insurance Risk Classification in an Era of Genomics: Is a Rational Discrimination Policy Rational?" 96 Nebraska Law Review 624 (2018), 64 pages.
Anya E.R. Prince, "Age and Perceived Risks and Benefits of Preventive Genomic Screening," with Margaret Waltz and others, 20 Genetics in Medicine 1038 (2018), 7 pages.
Anya E.R. Prince, "Is there Evidence that we should Screen the General Population for Lynch Syndrome with Genetic Testing? A Systematic Review," with R.J. Cadigan and others. 10 Pharmacogenomics and Personalized Medicine 49 (2017), 12 pages.
Anya E.R. Prince, "Membership Recruitment and Training in Health Care Ethics Committees: Results from a National Pilot Survey," with R.J. Cadigan, and others, 8 AJOB Empirical Bioethics 161 (2017), 9 pages.
Anya E.R. Prince, "Which Results to Return: Subjective Judgments in Selecting Medically Actionable Genes," with G. Lázaro-Muñoz, and others, 21 Genetic Testing and Molecular Biomarkers 184 (2017), 11 pages.
Anya E.R. Prince, "Navigating Professional Norms in an Inter-Professional Environment: The 'Practice' of Healthcare Ethics Committees," 15 Connecticut Public Interest Law Journal 115 (2016), 42 pages.
Anya E.R. Prince, "Tantamount to Fraud? Exploring Non-Disclosure of Genetic Information in Life Insurance Applications as Grounds for Policy Rescission," 26 Case Western Reserve Health Matrix: Journal of Law-Medicine 255 (2016), 52 pages.
Anya E.R. Prince, "Automatic Placement of Genomic Research Results in Medical Records: Do Researchers have a Duty? Should Participants have a Choice?" with J.M. Conley and others, 43 Journal of Law, Medicine & Ethics 827 (2015), 16 pages.
Anya E.R. Prince, "Prevention for those who can Pay: Insurance Reimbursement of Genetic-based Preventive Interventions in the Liminal State between Health and Disease," 2 Journal of Law and the Biosciences 365 (2015), 31 pages.
Anya E.R. Prince, "Scientific Social Responsibility: Lessons from the Corporate Social Responsibility Movement," with J. Conley and others, 15 American Journal of Bioethics 64 (2015), 3 pages.
Anya E.R. Prince, "Factors which Impact the Delivery of Genetic Risk Assessment Services Focused on Inherited Cancer Genomics: Expanding the Role and Reach of Certified Genetics Professionals," with C. Radford and T. Pal, 23 Journal of Genetic Counseling 522 (2014), 9 pages.
Anya E.R. Prince, "Genetic Information, Non-discrimination, and Privacy Protections in Genetic Counseling Practice," with M.I. Roche, 23 Journal of Genetic Counseling 891 (2014), 12 pages.
Anya E.R. Prince, "Genomic Screening of the General Adult Population: Key Concepts for Assessing Net Benefit with Systematic Evidence Reviews," with J.S. Berg and others. 17 Genetics in Medicine 441 (2014), 3 pages.
Anya E.R. Prince, "Comprehensive Protection of Genetic Information: One Size Privacy or Property Models may not Fit All," 79 Brooklyn Law Review 175 (2013), 52 pages.
Anya E.R. Prince, "When does an Illness begin: Genetic Discrimination and Disease Manifestation," with B.E. Berkman, 40 Journal of Law, Medicine & Ethics 655 (2012), 10 pages.
Short Essays
Anya E.R. Prince, "The Genetic Information Privacy Act: Drawbacks and Limitations," 330 JAMA: Journal of the American Medical Association 2049 (2023), 2 pages. (DOI: 10.1001/jama.2023.22345)
Anya E.R. Prince, "The Slippery Slope of Prenatal Testing for Social Traits," with others, 3 American Journal of Bioethics 36 (2023), 3 pages. (DOI: 10.1080/15265161.2023.2169395)
Anya E.R. Prince, "Privacy and the Genetic Community," with Marisa A. Leib-Neri, 22 American Journal of Bioethics 70 (2022), 3 pages.
Anya E.R. Prince, "Direct-to-Consumer Genetic Testing and Potential Loopholes in Protecting Consumer Privacy and Nondiscrimination," with Rachele M. Hendricks-Sturrup and Christine Y. Lu, 321 JAMA 1869 (2019), 2 pages.